Hi. I’m Alex. My story started in January 2019.  Through telling it, I aim to share some thoughts and everyday advice for fellow sufferers on their road to better health.

This website is also intended to raise awareness and drive conversation around the condition. Together with a feeling of community, I hope we can continue the push for real answers and real attention from the medical community. 

A sense of solidarity can be a small but useful lift on your road to better health. Feel free to get in touch for a chat or if you need someone to listen to.